About Us
The Barnet Integrated Care Pathway for Down Syndrome - connecting families, healthcare providers, educators, and carers with local services, expert guidance, and coordinated support throughout every life stage
About Down Syndrome and Barnet
Down Syndrome is the most common chromosomal condition, occurring in approximately 1 in 600-700 live births. In Barnet, around 6 babies are born with Down Syndrome annually. Whether you are a healthcare provider, educator, or carer, we aim to equip you with the knowledge to provide consistent, effective support.
Scope and Purpose of the Barnet Integrated Care Pathway
The Barnet Integrated Care Pathway offers a shared framework for professionals across different sectors to deliver holistic, person-centred care. Developed in collaboration with families and local experts, this pathway aligns with national guidance while addressing Barnet's local services and needs. The Down Syndrome Leading Edge Group - a multiprofessional group that includes individuals with lived experience - works collaboratively to promote coordinated care, improve service access, and enhance quality. Their insight and involvement ensure that this pathway reflects real-world experiences and local priorities.
Guiding Principles of the Pathway
- The right people: Multi-disciplinary teams providing expert care.
- In the right order: A clear, logical sequence of services.
- In the right place: Local resources accessible to families and professionals.
- Doing the right thing: Best practices based on evidence and experience.
- At the right time: Timely interventions for better outcomes.
- With the right outcomes: Person-centred, measurable improvements.
The pathway does not replace core services but provides localised guidance on additional resources relevant to individuals with Down Syndrome. It helps professionals across sectors understand the local landscape, ensuring consistent, joined-up support throughout every life stage.
Website Maintenance & Queries
- Dr Ella Rachamim, Community Paediatrician, Barnet.
- Dr Anna Petsas, parent representative for Barnet Leading Edge Group (LEG) for DS.
- Mrs Sandra Redman, Education Advisor for DS.
- Mr Michael Wallett, Tech Lead.