Resources for Transition From Child to Adult Services
Transition protocols, Expert Patient and Parent Programmes, and comprehensive resources for young people moving to adult health and social care
Overview
Barnet Multi-Agency Preparation for Adulthood (PfA)
Barnet Multi-Agency Preparation for Adulthood (PfA) - Protocol First Review 2020-2023. This describes the planning process to support transition from adolescence into adulthood for young people with complex learning difficulties, disabilities, additional needs or mental health needs.
BACDIS: Transition
BACDIS: Transition: Moving on Well is an excellent document with lots of valuable information and resources, with support groups and websites that parents, young people and schools/colleges may find useful.
Youth Health Talk and Transition Information
Youth Health Talk and Transition Information Network.
Transition Information Network
Transition Information Network has useful resources of information and good practice for young people, families and professionals.
Mental Wellness in Adults with Down Syndrome
Mental Wellness in Adults with Down Syndrome: A Guide to Emotional and Behavioral Strengths and Challenges (2nd Edition) - April 2021 | Dennis McGuire, PhD and Brian Chicoine, MD - Book (2021).
Mental Wellness emphasises that understanding and appreciating both the strengths and challenges of people with Down syndrome is the key to promoting good mental health. It shows readers how to distinguish between bona fide mental health issues and common characteristics of Down Syndrome-quirks or coping strategies. For example, although talking to oneself can be a sign of psychosis, many adults with Down syndrome use self-talk as an effective problem-solving strategy. New chapters on sensory issues and regression, expanded and now separate chapters on communication, concrete thinking, and visual memory, and an extensively updated chapter on Alzheimer's disease, citing abundant new research. Other chapters cover a range of conditions and assessment and treatment options:
- What Is Normal?
- Self-Esteem & Self-Image
- Self-Talk
- Grooves & Flexibility
- Life-Span Issues
- Social Skills
- Mood & Anxiety Disorders
- Obsessive-Compulsive Disorder
- Psychotic Disorders
- Eating Refusal
- Challenging Behavior
- Self-Injurious Behavior
- Autism
- Tics, Tourette Syndrome & Stereotypies
Expert Patient Programme
It can help adults with long-term health conditions develop confidence in taking control of their own health needs. Local initiatives:
Expert Parent Programme
This programme offers parents a combination of training, e-learning and toolkits to help them navigate the health system. The Supporting Parents Programme is available at the Expert Parent Programme.
Other Resources
- The National Service Framework for Long-term Conditions Multidisciplinary working is emphasised in this document published by the Department of Health in 2005; it underlines the importance of maintaining independence and social and psychological wellbeing, including personal care, equipment (assistive technology) and housing planned around individual needs.
- The Transforming Care Prevention and Support (TCaPS) service is an NHS England Accelerator site initiative. Using a keyworker model, the service provides flexible early intervention and crisis prevention support for young people and their families rated green and/or amber on the At Risk of Admission registers. It includes funding for Personal Health Budgets (PHBs), which have been particularly successful in supporting the needs of people with autism and learning disability.