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Down Syndrome Integrated Care Pathway
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What to Expect
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Appendices
Acknowledgements
List of appendices
01: Referral form & notes
02. Resources
03: Dysphagia, SLT
04: Haematology guidance
05:Homecare and Community paediatric nurses
06: Nutrition and dietetics service
07: Infographic: Top tips for triaging and treating kids with DS
08: DS specific Growth charts and Inserts for red book
09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter
10: Breastfeeding Support
11: A letter from a Barnet parent
12: Immune System, Infections and Immunisations
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
17: 0-25 Children’s Disability Team, Children's Social care
18: Neonatal guidelines from DSMIG (2018-9)
19: Paediatric physiotherapy services
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
25: Musculoskeletal complications and Referral form for Orthotics
26: The SCERTS® Model:
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
27: CAMHS services, SCAN and Referral forms
28: Occupational therapy (OT) services
29: School nursing referral information
30: Fluid and food thickeners - information
31: Education
32: Learning Disabilities Directed Enhanced Services
33: Managing behaviour
34A: Nutrition and supplementation - including vitamin D
34B: Nutrivene- D and UK perspective
34C: Vitamin D
35: Sports, clubs, groups, days out
36: Sex & Relationships Education
37: ILD Team in Barnet
38: Transition Resources
39: Health checklists for people with learning disability
40: Diabetes and Down Syndrome
41: Government policy relevant to SEN and Down Syndrome
42: Additional diagnoses
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
45: Making visits to hospitals easier - resources
46: Decision making, mental capacity act (MCA), Learning Disability Register
DS Regression Disorder
Dementia
Renal
Employment
Contact Us
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Down Syndrome Integrated Care Pathway
Home
What to Expect
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Appendices
Acknowledgements
List of appendices
01: Referral form & notes
02. Resources
03: Dysphagia, SLT
04: Haematology guidance
05:Homecare and Community paediatric nurses
06: Nutrition and dietetics service
07: Infographic: Top tips for triaging and treating kids with DS
08: DS specific Growth charts and Inserts for red book
09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter
10: Breastfeeding Support
11: A letter from a Barnet parent
12: Immune System, Infections and Immunisations
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
17: 0-25 Children’s Disability Team, Children's Social care
18: Neonatal guidelines from DSMIG (2018-9)
19: Paediatric physiotherapy services
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
25: Musculoskeletal complications and Referral form for Orthotics
26: The SCERTS® Model:
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
27: CAMHS services, SCAN and Referral forms
28: Occupational therapy (OT) services
29: School nursing referral information
30: Fluid and food thickeners - information
31: Education
32: Learning Disabilities Directed Enhanced Services
33: Managing behaviour
34A: Nutrition and supplementation - including vitamin D
34B: Nutrivene- D and UK perspective
34C: Vitamin D
35: Sports, clubs, groups, days out
36: Sex & Relationships Education
37: ILD Team in Barnet
38: Transition Resources
39: Health checklists for people with learning disability
40: Diabetes and Down Syndrome
41: Government policy relevant to SEN and Down Syndrome
42: Additional diagnoses
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
45: Making visits to hospitals easier - resources
46: Decision making, mental capacity act (MCA), Learning Disability Register
DS Regression Disorder
Dementia
Renal
Employment
Contact Us
Open Menu
Close Menu
Home
Folder:
What to Expect
Back
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Folder:
Appendices
Back
Acknowledgements
List of appendices
01: Referral form & notes
02. Resources
03: Dysphagia, SLT
04: Haematology guidance
05:Homecare and Community paediatric nurses
06: Nutrition and dietetics service
07: Infographic: Top tips for triaging and treating kids with DS
08: DS specific Growth charts and Inserts for red book
09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter
10: Breastfeeding Support
11: A letter from a Barnet parent
12: Immune System, Infections and Immunisations
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
17: 0-25 Children’s Disability Team, Children's Social care
18: Neonatal guidelines from DSMIG (2018-9)
19: Paediatric physiotherapy services
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
25: Musculoskeletal complications and Referral form for Orthotics
26: The SCERTS® Model:
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
27: CAMHS services, SCAN and Referral forms
28: Occupational therapy (OT) services
29: School nursing referral information
30: Fluid and food thickeners - information
31: Education
32: Learning Disabilities Directed Enhanced Services
33: Managing behaviour
34A: Nutrition and supplementation - including vitamin D
34B: Nutrivene- D and UK perspective
34C: Vitamin D
35: Sports, clubs, groups, days out
36: Sex & Relationships Education
37: ILD Team in Barnet
38: Transition Resources
39: Health checklists for people with learning disability
40: Diabetes and Down Syndrome
41: Government policy relevant to SEN and Down Syndrome
42: Additional diagnoses
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
45: Making visits to hospitals easier - resources
46: Decision making, mental capacity act (MCA), Learning Disability Register
DS Regression Disorder
Dementia
Renal
Employment
Contact Us
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