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Down Syndrome Integrated Care Pathway
Home
Carers Support
02. Resources
11: A letter from a Barnet parent
17: 0-25 Children’s Disability Team, Children's Social care, , Social Care (OT)
45: Making visits to hospitals easier - resources
What to Expect
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Medical
01 - Referral Forms
04: Haematology guidance
05: Homecare and Community paediatric nurses
07: Infographic: Top tips for triaging and treating kids with DS
12: Immune System, Infections and Immunisations
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
29: School nursing referral information
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
18: Neonatal guidelines from DSMIG (2018-9)
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
32: Learning Disabilities Directed Enhanced Services
40: Diabetes and Down Syndrome
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
47: DS Regression Disorder
48: Dementia
49: Renal
Feeding & Nutrition
03: Dysphagia, SLT
06: Nutrition and dietetics service
08: DS specific Growth charts and Inserts for red book
10: Breastfeeding Support
30: Fluid and food thickeners - information
34A: Nutrition and supplementation
34B: Nutrivene- D and UK perspective
34C: Vitamin D
Clubs & Sport
35: Sports, clubs, groups, days out
Therapies
01: Referral form & notes
19: Paediatric physiotherapy services
25: Musculoskeletal complications and Referral form for Orthotics
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
26C: The SCERTS® Model:
28: Occupational therapy (OT) services
Mental Health
27: CAMHS services, SCAN and Referral forms
33: Managing behaviour
37: ILD Team in Barnet
42: Additional diagnoses
Education
01 - Referral forms
09 - Big DS Hub
31: Education
36: Sex & Relationships Education
Adulthood
31 - Education
32 - GP letter
38: Transition Resources
39: Health checklists for people with learning disability
50: Employment
Legal & Financial
41: Government policy relevant to SEN and Down Syndrome
46: Decision making, mental capacity act (MCA), Learning Disability Register
Info
Acknowledgements
List of appendices
51: Abbreviations
Contact Us
Noticeboard
Open Menu
Close Menu
Down Syndrome Integrated Care Pathway
Home
Carers Support
02. Resources
11: A letter from a Barnet parent
17: 0-25 Children’s Disability Team, Children's Social care, , Social Care (OT)
45: Making visits to hospitals easier - resources
What to Expect
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Medical
01 - Referral Forms
04: Haematology guidance
05: Homecare and Community paediatric nurses
07: Infographic: Top tips for triaging and treating kids with DS
12: Immune System, Infections and Immunisations
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
29: School nursing referral information
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
18: Neonatal guidelines from DSMIG (2018-9)
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
32: Learning Disabilities Directed Enhanced Services
40: Diabetes and Down Syndrome
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
47: DS Regression Disorder
48: Dementia
49: Renal
Feeding & Nutrition
03: Dysphagia, SLT
06: Nutrition and dietetics service
08: DS specific Growth charts and Inserts for red book
10: Breastfeeding Support
30: Fluid and food thickeners - information
34A: Nutrition and supplementation
34B: Nutrivene- D and UK perspective
34C: Vitamin D
Clubs & Sport
35: Sports, clubs, groups, days out
Therapies
01: Referral form & notes
19: Paediatric physiotherapy services
25: Musculoskeletal complications and Referral form for Orthotics
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
26C: The SCERTS® Model:
28: Occupational therapy (OT) services
Mental Health
27: CAMHS services, SCAN and Referral forms
33: Managing behaviour
37: ILD Team in Barnet
42: Additional diagnoses
Education
01 - Referral forms
09 - Big DS Hub
31: Education
36: Sex & Relationships Education
Adulthood
31 - Education
32 - GP letter
38: Transition Resources
39: Health checklists for people with learning disability
50: Employment
Legal & Financial
41: Government policy relevant to SEN and Down Syndrome
46: Decision making, mental capacity act (MCA), Learning Disability Register
Info
Acknowledgements
List of appendices
51: Abbreviations
Contact Us
Noticeboard
Open Menu
Close Menu
Home
Folder:
Carers Support
Back
02. Resources
11: A letter from a Barnet parent
17: 0-25 Children’s Disability Team, Children's Social care, , Social Care (OT)
45: Making visits to hospitals easier - resources
Folder:
What to Expect
Back
Antenatal Pathway
Neonatal Pathway
Prior to discharge
First Few Weeks
Early Years
Pre-school
The School-age years
Fourteen to Adult
Adulthood
Folder:
Medical
Back
01 - Referral Forms
04: Haematology guidance
05: Homecare and Community paediatric nurses
07: Infographic: Top tips for triaging and treating kids with DS
12: Immune System, Infections and Immunisations
13: Sleep & sleep disorders
14: Constipation, Coeliac screening
15A: Neurophysiology referral form and melatonin guidance
29: School nursing referral information
15B: Infantile Spasms (IS)
16: Criteria for RSV prophylaxis
18: Neonatal guidelines from DSMIG (2018-9)
20: Thyroid guidance (updated 2020)
21: Atlanto-axial instability
22: Dental information and referral form
23: Hearing and audiology pathway
24: Ophthalmology pathway
32: Learning Disabilities Directed Enhanced Services
40: Diabetes and Down Syndrome
43: Down Syndrome Checklists
44: Acute presentations to A & E - in Down Syndrome
47: DS Regression Disorder
48: Dementia
49: Renal
Folder:
Feeding & Nutrition
Back
03: Dysphagia, SLT
06: Nutrition and dietetics service
08: DS specific Growth charts and Inserts for red book
10: Breastfeeding Support
30: Fluid and food thickeners - information
34A: Nutrition and supplementation
34B: Nutrivene- D and UK perspective
34C: Vitamin D
Folder:
Clubs & Sport
Back
35: Sports, clubs, groups, days out
Folder:
Therapies
Back
01: Referral form & notes
19: Paediatric physiotherapy services
25: Musculoskeletal complications and Referral form for Orthotics
26A: Communication
26B: - Oromotor exercises – MDT (multidisciplinary) approach
26C: The SCERTS® Model:
28: Occupational therapy (OT) services
Folder:
Mental Health
Back
27: CAMHS services, SCAN and Referral forms
33: Managing behaviour
37: ILD Team in Barnet
42: Additional diagnoses
Folder:
Education
Back
01 - Referral forms
09 - Big DS Hub
31: Education
36: Sex & Relationships Education
Folder:
Adulthood
Back
31 - Education
32 - GP letter
38: Transition Resources
39: Health checklists for people with learning disability
50: Employment
Folder:
Legal & Financial
Back
41: Government policy relevant to SEN and Down Syndrome
46: Decision making, mental capacity act (MCA), Learning Disability Register
Folder:
Info
Back
Acknowledgements
List of appendices
51: Abbreviations
Contact Us
Folder:
Noticeboard
Back
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