Appendix 34(B) - Nutrivene- D and UK perspective

Nutrivene - D

UK perspective and guidance from DSMIG (2018): Dr Jill Ellis, a paediatrician and member of the UK DSMIG, was the lead researcher in the UK on a trial to see if it works.

Here is the journal Paper:
Supplementation with antioxidants and folinic acid for children with Down Syndrome: randomised controlled trial.

Objectives To assess whether supplementation with antioxidants, folinic acid, or both improves the psychomotor and language development of children with Down Syndrome. Design Randomised controlled trial with two by two factorial design.

• https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2267988/

Here is Jill Ellis talking about it on Youtube. An excellent short summary and presentation about their research study.

• Dr Jill Ellis - Vitamins & Minerals for Children with Down Syndrome 2006

• https://youtu.be/e2K08ipGxTY

Here is the Down’s Syndrome Association statement:

• Targeted Nutritional Therapy | Down’s Syndrome Association

https://www.downs-syndrome.org.uk/about/where-we-stand/targeted-nutritional-therapy

So in conclusion, we do not support this treatment and do not believe it has any benefits in the short or long term, supported by our own UK based research trials.

Dr Ella Rachamim, Community paediatrician (2018 conversation and DSMIG Winter conference)