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Down Syndrome Pathway

Antenatal Pathway

Neonatal Pathway

Prior to discharge

First Few Weeks

The School-age years

Fourteen to Adult

Thankyous and acknowledgements

List of appendices

01: Referral form & notes

02: Support groups

03: Paediatric complex needs

04: Haematology guidance

05:Homecare and Community paediatric nurses

06: Nutrition and dietetics service

07: Infographic: Top tips for triaging and treating kids with DS

08: DS specific Growth charts and Inserts for red book

09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter

10: Breastfeeding Support

11: A letter from a Barnet parent

12: Unusual or recurrent infections

13: Sleep & sleep disorders

14: Constipation, Coeliac screening

15A: Neurophysiology referral form and melatonin guidance

15B: Infantile Spasms (IS)

16: Criteria for RSV prophylaxis

17: 0-25 Children’s Disability Team, Children's Social care

18: Neonatal guidelines from DSMIG (2018-9)

19: Paediatric physiotherapy services

20: Thyroid guidance (updated 2020)

21: Atlanto-axial instability

22: Dental information and referral form

23: Hearing and audiology pathway

24: Ophthalmology pathway

25: Musculoskeletal complications and Referral form for Orthotics

26: The SCERTS® Model:

26A: Communication

26B: - Oromotor exercises – MDT (multidisciplinary) approach

27: CAMHS services, SCAN and Referral forms

28: Occupational therapy (OT) services

29: School nursing referral information

30: Fluid and food thickeners - information

32: Learning Disabilities Directed Enhanced Services

33: Managing behaviour

34A: Nutrition and supplementation - including vitamin D

34B: Nutrivene- D and UK perspective

35: Sports, clubs, groups, days out

36: Sex & Relationships Education

37: ILD Team in Barnet

38: Transition Resources

39: Health checklists for people with learning disability

40: Diabetes and Down Syndrome

41: Government policy relevant to SEN and Down Syndrome

42: Additional diagnoses

43: Down Syndrome Checklists

44: Acute presentations to A & E - in Down Syndrome

45: Making visits to hospitals easier - resources

46: Decision making, mental capacity act (MCA), Learning Disability Register

Down Syndrome Pathway

Antenatal Pathway

Neonatal Pathway

Prior to discharge

First Few Weeks

The School-age years

Fourteen to Adult

Thankyous and acknowledgements

List of appendices

01: Referral form & notes

02: Support groups

03: Paediatric complex needs

04: Haematology guidance

05:Homecare and Community paediatric nurses

06: Nutrition and dietetics service

07: Infographic: Top tips for triaging and treating kids with DS

08: DS specific Growth charts and Inserts for red book

09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter

10: Breastfeeding Support

11: A letter from a Barnet parent

12: Unusual or recurrent infections

13: Sleep & sleep disorders

14: Constipation, Coeliac screening

15A: Neurophysiology referral form and melatonin guidance

15B: Infantile Spasms (IS)

16: Criteria for RSV prophylaxis

17: 0-25 Children’s Disability Team, Children's Social care

18: Neonatal guidelines from DSMIG (2018-9)

19: Paediatric physiotherapy services

20: Thyroid guidance (updated 2020)

21: Atlanto-axial instability

22: Dental information and referral form

23: Hearing and audiology pathway

24: Ophthalmology pathway

25: Musculoskeletal complications and Referral form for Orthotics

26: The SCERTS® Model:

26A: Communication

26B: - Oromotor exercises – MDT (multidisciplinary) approach

27: CAMHS services, SCAN and Referral forms

28: Occupational therapy (OT) services

29: School nursing referral information

30: Fluid and food thickeners - information

32: Learning Disabilities Directed Enhanced Services

33: Managing behaviour

34A: Nutrition and supplementation - including vitamin D

34B: Nutrivene- D and UK perspective

35: Sports, clubs, groups, days out

36: Sex & Relationships Education

37: ILD Team in Barnet

38: Transition Resources

39: Health checklists for people with learning disability

40: Diabetes and Down Syndrome

41: Government policy relevant to SEN and Down Syndrome

42: Additional diagnoses

43: Down Syndrome Checklists

44: Acute presentations to A & E - in Down Syndrome

45: Making visits to hospitals easier - resources

46: Decision making, mental capacity act (MCA), Learning Disability Register

Folder: What to Expect

Antenatal Pathway

Neonatal Pathway

Prior to discharge

First Few Weeks

The School-age years

Fourteen to Adult

Folder: Appendices

Thankyous and acknowledgements

List of appendices

01: Referral form & notes

02: Support groups

03: Paediatric complex needs

04: Haematology guidance

05:Homecare and Community paediatric nurses

06: Nutrition and dietetics service

07: Infographic: Top tips for triaging and treating kids with DS

08: DS specific Growth charts and Inserts for red book

09 - Early Years SEND Advisor for Down Syndrome - Parent’s letter

10: Breastfeeding Support

11: A letter from a Barnet parent

12: Unusual or recurrent infections

13: Sleep & sleep disorders

14: Constipation, Coeliac screening

15A: Neurophysiology referral form and melatonin guidance

15B: Infantile Spasms (IS)

16: Criteria for RSV prophylaxis

17: 0-25 Children’s Disability Team, Children's Social care

18: Neonatal guidelines from DSMIG (2018-9)

19: Paediatric physiotherapy services

20: Thyroid guidance (updated 2020)

21: Atlanto-axial instability

22: Dental information and referral form

23: Hearing and audiology pathway

24: Ophthalmology pathway

25: Musculoskeletal complications and Referral form for Orthotics

26: The SCERTS® Model:

26A: Communication

26B: - Oromotor exercises – MDT (multidisciplinary) approach

27: CAMHS services, SCAN and Referral forms

28: Occupational therapy (OT) services

29: School nursing referral information

30: Fluid and food thickeners - information

32: Learning Disabilities Directed Enhanced Services

33: Managing behaviour

34A: Nutrition and supplementation - including vitamin D

34B: Nutrivene- D and UK perspective

35: Sports, clubs, groups, days out

36: Sex & Relationships Education

37: ILD Team in Barnet

38: Transition Resources

39: Health checklists for people with learning disability

40: Diabetes and Down Syndrome

41: Government policy relevant to SEN and Down Syndrome

42: Additional diagnoses

43: Down Syndrome Checklists

44: Acute presentations to A & E - in Down Syndrome

45: Making visits to hospitals easier - resources

46: Decision making, mental capacity act (MCA), Learning Disability Register

Appendix 34(C) - Vitamin D: Protocol and treatment:

Royal Osteoporosis Society | Vitamin D for bones
Vitamin D supplements and tests